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Wednesday, March 21, 2007

And the doctor says...

The news wasn't all that bad! Thyroid, kidney, liver functions all great. Blood sugar great. Potassium, calcium, chloride, and the other one were great. Blood pressure was the best it's been for a while!

As far as the cholesterol numbers go, they need help but overall weren't too bad. My mother's total cholesterol was over 300 for a good while and she has been taking meds for years. The numbers I got back today were:

triglycerides: 127 (should be 0-149)
HDL: 45 (should be in the 50's to 60's)
VLDL: 25 (should be 5-40)
LDL: 127 (standard is 0-99, but with high blood pressure and meds, aim for 70's to 80's)
Total Cholesterol: 197 (should be 100-199)

The HDL is the 'good' cholesterol, and it is rather low; the LDL is the 'bad' cholesterol, and it is high (not soaring, but still of concern). We're pretty certain that the cause is genetics, since I have been focusing on my eating and exercise for many months and am already doing the things that are suggested as the first steps in lowering cholesterol. We discussed the possibilities of medications and vitamins and fish oils... Since I have been through so much in the past few years (hysterectomy, severe allergic reactions, hernia repair surgery, more anaphylaxis to name but a few...) we agreed that we will not be passive, but will work to get it under control NOW. I expressed my concerns with the statins (and lack of education regarding them), and figure that is probably how we will end up going. We're going to add more fish oils into the diet, and make sure I'm getting my B vitamins. It is a hard decision, but I feel I have to give serious thought to the lipitor or zocor (since there is a generic available and our insurance is SO lame in what they will cover if it isn't generic) In any case, we are monitoring this closely now, as well as the metabolic panel, and I am bound and determined to get healthy!

blah blah blah... enough of the medical stuff. This afternoon I intend to make lunch, clean up and do some crafting. I will also do some more descriptions for the website, but I want to have something created today. That always inspires me to keep on going!

Have a blessed day!

Tuesday, March 20, 2007

A Silver Lining

I am so excited! Today I torch-fired my first PMC (silver clay) piece. This clay is wonderful: it is tiny, as in microscopic, pieces of silver in an organic clay. When you fire it, the clay burns off, leaving fine silver. This piece is a pendant with a cross cut out of it and a notched frame, so to speak. Since it is my first piece, I figured I'd ruin it with the torch, so I didn't do my best work in shaping it, but it still turned out beautifully! *Doin the happy dance!* Oh, the possibilities this brings to mind!

I have been working on my website. I uploaded photographs of many of the pieces of jewelry that I currently have in stock; now I am working on writing up all of the descriptions and prices. I really do wish I had access to storefront software, but this will do for now!

I heard back from my doctor today. I had blood tests done last week, checking cholesterol etc. since I'm on blood pressure meds. They called to say that I needed to come in tomorrow morning to discuss the results with her. She had warned me in advance that if the results were unfavorable, she would call me in to discuss options. So, I have an appointment for 9AM. I have been on Weight Watchers for 5 months now and am eating properly. This makes me think that dietary control is not going to be an option. I am praying for wisdom, and, of course, for full manifestation of the health Jesus purchased for me at Calvary!

Saturday, March 17, 2007

Weighing In

This past month has been awful as far as weight-loss goes. Obviously, I gained. Lots of reasons/excuses, like the prednisone I had to take for so long, and the trip to Ohio, and dealing with the bladder/kidney infection. Truth is, ups and downs to happen. The question is, how am I going to react when the scales read heavier?

In times past, the numbers on the scale would have been devastating. I would have reacted by - can you guess it? - running to the fridge for some "comfort food." That is the wrong reaction if I want to get back on a losing trend! Old habits die hard, but they CAN die. The right response is to settle down after the initial freakout and continue to eat correctly. If I have fallen off the wagon, then I must stand up, dust off, and jump back on.

I gained 8 lbs over the course of the past month, most of that from the prednisone, but some of it from not eating properly on my trip. At this point I am down 5 of those pounds and looking forward to getting the rest back off! I CAN get below 170, and I fully intend to!

This experience has reminded me of how so many people react to mistakes we might make in other areas of our lives, especially in our relationsips with God. If (when) we do make a mistake, are we going to try to hide from Him, claiming that He couldn't possibly want us around anymore? Are we going to run? Are we going to become belligerant? Do we just give up and sink lower because we don't want to have to start all over in our walks with Him? Or do we go to Him, confess our mistakes, purpose to turn from the mistakes and pick up where we left off?

So many people don't know it's an option. I John 1:9 says that if we confess our sin, He is faithful and just to forgive our sin and cleanse us from all unrighteousness. Jesus' sacrifice was once, and for all. You can't take that away! We are restored to right standing with God - righteousness! - and are able at that point to start growing in Him again.

So whether it is spiritual or physical, I purpose not to run to the fridge for comfort, but rather run into the open arms of my Loving Father. Here I come...

Tuesday, March 13, 2007

What a month!

It has been some kind of month. I had been missing my daughter so much, so I took her younger siblings on a road trip to go see her. (This was at her request, too, so it's not like we imposed or anything!) Don't you know, the day I was supposed to leave, I woke up to over a foot of snow on the ground! I was so bummed, I stayed in bed most of the day. Making a long and depressing story short, I decided to leave that night and drive all the way through til sunrise. Most of the time that would have been foolish for me to attempt, but it worked out beautifully since I had moped for so much of the day, and expended very little energy doing so! I was fully awake for the whole night.

Honestly, the visit didn't go that well. I loved seeing my daughter and enjoyed my time with her, but the little ones were awful for pretty much most of the time. My daughter also had to be on the phone or the computer with work-related issues much of the time, too, and I think I only saw her husband for about 1-5 minutes each day. That was a shame all around.

Even the most pitiful travel still must have some sunshine somewhere along the way... besides seeing it in my beautiful girl's smile, I saw it in a quick visit across the state line to visit a friend. We had actually never met before, other than through a cancer-related internet discussion board and many emails. She is a Christian who is battling the same kind of tumor my little Stephen had. We have been emailing for a couple of years, and I finally got to meet her! She is precious. She also introduced me to a woman who heads up a foundation which raises money for research on spinal cord tumors, and that was a fantastic meeting, divinely orchestrated. I am looking forward very much to working with Malia's Cord Foundation. Check them out at http:www.cordfoundation.org

I am really glad I got to go out and see Becki, Carol and Cara. Three very precious women who definitely brighten up my life! Please keep Carol in your prayers, as she started a new chemo recently and should be having another MRI anytime now to assess the effectiveness of it. I trust God completely for her healing and pray that she sees evidence of it on this next scan!!! Pray for Becki as she is at a crossroads with her business and definitely wants to do as God wants her to do. And pray for Cara and Malia's Cord Foundation, that their efforts will ultimately greatly contribute to finding a cure for spinal cord tumors.

Friday, February 9, 2007

Busy Day Today

I'm downstairs in my special place trying to sort out how this day should run. I know a few facts, like the allergy appointment at 11 and the kids BookIt lunch shortly afterward. I know I need to go get some PJ's for Zack, and some groceries and batteries and pay some bills and sort out the medical bills better so we can attack them better when the tax refund comes... But what I really want to do is stay down here in this little room, my craft room, and play.

The first craft show I intend to work this year is in May. I have some jewelry ready, but I need to do alot more. I have not mastered time management yet (praying for wisdom and understanding, though, so I WILL get it!) I haven't figured out how to school the children and keep the house really clean. Anything beyond those two has eluded me completely.

I want a solid quiet time with God every day. I NEED it.
I want some craft/business time several times a week.
I want to have a spotless house, but I have been ever so willing to sacrifice the spotless part for the sake of the kids' schooling. It needs to be cleaner, though...
I want time to play music every day.
I want to finish my basement so I have a nice, consistent classroom and access to the craftroom, and so my husband can have a space of his own to sprawl over without taking up my craftroom!

These are strong desires and needs. I will find a way to have better quiet times with the Lord, that is a must, but the rest are desires that I will just have to figure out and not obsess over. My first priority is my First Love, Jesus Christ, followed closely by my second, my husband. After that, it's the kids, training them, growing them, encouraging and allowing them to blossom. The rest may come - I hope and pray that it does come soon, of course - but it pales in comparison. I do know, though, that I am beloved, bought and paid-for, and that my desires matter to my Father in heaven. That gives me hope!

Tuesday, February 6, 2007

A Rough Weekend, to be Sure

This was a rough weekend indeed. I had another anaphylactic reaction, but this time I was home alone with the kids. I had shown my sons Joshua and Zechariah where I keep my epipens and how to do it, in case of emergency where I am not able to do it myself, just a few days ago. Then on Saturday, it started up. Most likely this reaction happened because of two reasons: first, the blasted doctor in the ER last week did not give me credit for knowing my own body and medical history. I told him that before, when I had the reaction to the crab and shrimp, that I had been put on prednisone 60mg for 4 days, and when it was stopped suddenly I had another anaphylactic reaction, and my doctor had suggested that it was probably a rebound reaction. He insisted that it was very rare and would not happen again. Guess what... The second reason this reaction probably happened was because when the prednisone was stopped from a high dose suddenly, a small allergen became a big one for the moment. I had brushed my sheltie, Charlie, about twenty minutes before my breathing became compromised. My hands had been itching, and I had not heard back from my regular doctor about whether I should risk taking benadryl or not.

When the itching started in my mouth and throat, and the tightening sensation started around my chest and neck, I called my dr on his private number (bless his precious heart for answering) to ask if I could take benadryl. He heard my breathing go from bad to worse and advised me to use my epipen and call for an ambulance. He said to tell the ER doctor to fax him a copy of the report and to please write the prednisone prescription as a 12 to 16-day step down. The ER doctor said NO. Fortunately, my husband called our dr back and he called the pharmacy directly with the step-down prescription.

Why do ER doctors so often refuse to HEAR what their patients present them? For example: Last week when I had the reaction, my heart started beating in a bigemini pattern (a PVC every other heartbeat) as the benadryl was being administered. I had not used my epipen before hitting the ER because we were close by (and BOY did I get read the riot act for that one!) so they gave me epinepherine when I got there, along with some strong steroids and benadryl. As the benadryl was being administered, I suddenly could taste it, then the sensation traveled to my heart and it started skipping beats. It might have been the epinepherine, as it does affect the heart, but given the physical trail that it took, it was most likely the benadryl. Perhaps it was administered faster than I can handle it. So when I got to the ER this time, I made sure to let them know about that reaction and the doctor told me that it was not the benadryl, but rather the epinepherine that caused it. He didn't say 'not likely,' but 'not.' He then proceeded to tell me that I should not use the epipen so quickly. Hmmmm... My throat was closing and I was having a harder and harder time breathing... when should I have used it? After I passed out??? (This is not even considering the fact that my own doctor told me to go use it, and I live at least twenty minutes from the hospital...) He said that I was not even wheezing when I got there. Let's see... The epi started wearing off in the ambulance, enough that the techs got REALLY nervous and wanted to administer a second epi. They called the dr in the ER and he advised them to administer an albuterol neb treatment instead, which did the trick for a while. Hence, no wheezing... Anyway, I asked the doctor, "Okay, then. Would you please advise me as to when I SHOULD use the epipen?" He said, "No." I reminded him that my throat was closing and I was having a hard time breathing with 4 small children in the house, and he would only say "It's different for each person."

Even though he doesn't believe the benadryl was the cause of the bigemini, he did order a slightly different antihistimine, and a lower dose of it, and it was administered by IV over a ten-minute period. I was not watching the nurse, but I could tell every single time she pushed some in. I could taste it, then I felt like I was going to vomit. It got to where I had to close my eyes, because looking around made me feel like I was going to faint. After about 10 more minutes, those sensations lessened to a tolerable level, and I thank God that my heart only skipped a beat here and there rather than going into that awful rhythm!

I did my very best the whole time I was there to be calm. I used relaxation techniques to try to get past the freaky stuff. I tried to breathe slowly and evenly. I spoke kindly with the doctor and nurses (those nurses were wonderful.) But now I am honestly perturbed by the whole thing. Is it the ER doctor's version of pride or arrogance? I mean, this guy is supposed to be great. I had a similar situation in a different ER, more than once, during Stephen's treatments and on my own visits. It's like they don't give me credit for having a brain, or for knowing what I am talking about.

Hello, I've been here before! Hear me, Okay???

Friday, February 2, 2007

Date Night

This afternoon I was downstairs working our our taxes. Stephen came into the room and said, "Mom, I love you! Can we have a date night tonight?"

I love date night with my boys! It is generally an excuse to treat one of them really nice, and allow them to treat me nicely, too. They get to practice their manners and etiquette, and we get to eat really good food. Among seven children, individual time is at a premium! This is the way we've been able to make it happen over the past few years. It is not a frequent experience, but always a pleasant one.

Tonight, though, we honestly don't have the money for a date night. Still, I couldn't turn him down. I mean, I treasure every single time one of my children wants to spend time with ME! So I asked if we could have a date watching a movie together and enjoying some snacks. He was thrilled with that idea, so we are going to go watch RV (again) and enjoy some fruit and cheese and crackers. This is going to be wonderful!!!